Leprosy - knowledge, attitudes and practices among clinic attenders

OBJECTIVE: To investigate the knowledge, attitudes and practices among leprosy clinic attendees and to review the epidemiology of leprosy in Trinidad. DESIGN AND METHODS: A cross-sectional study was undertaken utilizing an interviewer administered structured questionnaire. All leprosy clinic attendees over the age of 18 years who attend 3 of the 5 leprosy clinics in Trinidad were included. Data were collected from April to July 2014. RESULTS: All 21 responders who were invited to participate agreed, giving a response rate of 100%. Fifty-two percent (52%) were unaware of how the disease is contracted. Most patients (81%) believed that educating the public would help eradicate leprosy-related stigma. Ninety percent (90%) reported that they were compliant with taking their medication and 86% reported that they attended all clinic appointments. The majority (76%) felt self-conscious about their disease and 50% have experienced negative feelings after diagnosis. CONCLUSION: Patients appear to be aware of signs and symptoms of leprosy but less so about transmission. There appears to be a need for educating patients about their illness as well as the public to reduce stigma associated with the illness. There was also a need for counselling of patients to minimize the reported distress, sadness and worry they experience after being diagnosed.