Development of a PREM for acute leukemia and/or stem cell transplantation.

195Background: People with complex hematologic malignancies (eg. acute leukemia) require highly specialized care from the time of initial diagnosis, throughout treatment and into survivorship. Often, stem cell transplantation is an essential component of treatment for some people with complex hematologic malignancies. A challenge with generic patient-reported experience measure (PREM) tools is that they do not capture areas of concern for a specific population, which was the case for people with complex hematologic malignancies. Therefore, a disease-specific PREM was developed to address relevant aspects of the patient experience. Methods: The development consisted of:1)literature review to identify relevant patient experience items;2)modified Delphi process where patient experience items were rated by experts (n = 10); 3)cognitive interviews (n = 8) to ensure that items were clear and understandable; and 4)pilot of survey. Results: Through the review of literature, two existing PREMs were identified as r...