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Rob Camp
Rob Camp
European Organisation for Rare Diseases
Nursing
Rare disease
Information needs
patient organisations
Clinical trial
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Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations
2020
BMJ Open
Annelise Roennow
Maureen Sauve
Joep Welling
Robert Riggs
Ann Tyrrell Kennedy
Ilaria Galetti
Edith Brown
Catarina Leite
Alex Gonzalez
Alexandra Paula Portales Guiraud
François Houÿez
Rob Camp
Annie Gilbert
Martina Gahlemann
Lizette Moros
Jose Luis Luna Flores
Friedrich Schmidt
Wiebke Sauter
Henrik W. Finnern
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