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Maria Paabøl Larsen
Maria Paabøl Larsen
Shire plc
Biology
Genetics
Internal medicine
Completeness (statistics)
Endocrinology
4
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33
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Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry
2017
Orphanet Journal of Rare Diseases
Joseph Muenzer
Simon A. Jones
Anna Tylki-Szymańska
Paul Harmatz
Nancy J. Mendelsohn
Nathalie Guffon
Roberto Giugliani
Barbara K. Burton
Maurizio Scarpa
Michael Beck
Yvonne Jangelind
Elizabeth Hernberg-Ståhl
Maria Paabøl Larsen
Tom Pulles
David Whiteman
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Insights into the management of patients with MPS II: Key findings following 10 years of the Hunter Outcome Survey (HOS)
2016
Molecular Genetics and Metabolism
David Whiteman
Roberto Giugliani
Maurizio Scarpa
Anna Tylki-Szymańska
Michael Beck
Maria Paabøl Larsen
Isabelle Morin
Joseph Muenzer
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Approaches to improving data completeness in a global registry in the short term: experience in the Hunter Outcome Survey (HOS)
2014
Molecular Genetics and Metabolism
Maria Paabøl Larsen
Marcella Lynch
Isabelle Morin
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Lessons learned in updating a large global registry to achieve long-term improvements in data completeness and quality: the Hunter Outcome Survey moving towards system enhancement (HOSMOSE) project
2014
Molecular Genetics and Metabolism
Maria Paabøl Larsen
Remi Gerin
Marcella Lynch
Isabelle Morin
Tom Pulles
Pauline Surrel
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