Abstract 5534: “Simply ask and explain”: perspectives from Black patients with lung cancer on strategies to address racial disparities in biospecimen research participation
Jeenn A. Barreiro-RosaOluwatumilara AkekeAnnabella OpokuAlison HiltonJessica Carda-AutenRandall TealAaron CarpenterHayley N. MorrisLauren MatthewsAshley Rankin CollinsMarjory Charlot
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Abstract Background: Participation of racially diverse populations in research is necessary to advance cancer care. However, representation of Black individuals in biospecimen cancer research remains low and requires being asked to engage in research. We sought to understand the experiences, beliefs, and knowledge about biospecimen research among Black patients with lung cancer. Methods: Semi-structured interviews with a purposive sample of 15 Black patients diagnosed with lung cancer were conducted between January and August 2022 at a large academic center in North Carolina. Interviews were digitally recorded and transcribed and analyzed using thematic analysis. Results: Themes related to who should initiate discussions about biospecimen donation, what should be considered before donation, and communication strategies to increase participation of Black patients with cancer in biospecimen research emerged from the interviews. Most participants indicated that discussions about biospecimen donation should be initiated by trusted and knowledgeable members of the medical team and most expressed trusting their providers. Some also expressed the importance of including family members in discussions about medical and research decisions. Some participants felt it was important to consider if donating specimens would cause pain or would require additional procedures. Recommended communication strategies to facilitate participation included use of simple and easily understood language in addition to messaging related to how biospecimen donation would benefit others. Participants also felt cultural humility, respect, and empathy during research recruitment would help enhance enrollment of Black participants in biospecimen research. Of note, all participants reported never being asked to participate in biospecimen research and felt that underrepresentation of Black participants may be due to not being asked. Conclusion: Black participants in this study have not been asked to participate in biospecimen research but are willing to be engaged in conversations about research from their medical team. Simply being asked, trusting their medical provider, cultural humility, and framing the message on how the research will benefit others are some of the recommended strategies to enhance research participation among Black patients. Future research should incorporate these strategies into an intervention to assess the impact on recruiting Black individuals in biomedical research. Sponsored by the Lung Cancer Research Foundation Research Grant on Disparities in Lung Cancer Citation Format: Jeenn A. Barreiro-Rosa, Oluwatumilara Akeke, Annabella Opoku, Alison Hilton, Jessica Carda-Auten, Randall Teal, Aaron Carpenter, Hayley N. Morris, Lauren Matthews, Ashley Rankin Collins, Marjory Charlot. “Simply ask and explain”: perspectives from Black patients with lung cancer on strategies to address racial disparities in biospecimen research participation. [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2023; Part 1 (Regular and Invited Abstracts); 2023 Apr 14-19; Orlando, FL. Philadelphia (PA): AACR; Cancer Res 2023;83(7_Suppl):Abstract nr 5534.Keywords:
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Donation Funds and Operation of Educational Foundation of American Universities and Its Implications
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Charitable crowdfunding is a new and rapidly developing way of fundraising, attracting interest from academics and practitioners. Existing research on reward-based crowdfunding and charitable giving cannot fully explain donation behaviors in donation-based crowdfunding. Developing methods for promoting donations is of interest to practitioners, and it remains unclear whether prior donation information promotes or inhibits subsequent contributions. To explore this question, we used data from the Tencent Philanthropy platform to analyze the impact of previous donation information. The results revealed a negative relationship between the cumulative donation amount and subsequent contributions. The cumulative donation amount had no significant impact on the number of donors, but reduced the amounts of individual contributions. Although a larger cumulative number of previous donors resulted in larger individual donation amounts, this number was associated with a smaller number of subsequent donors, resulting in a zero net effect of donor number on subsequent donations. Our results indicate that conformity and anti-conformity donation behaviors exist simultaneously in donation-based crowdfunding, elucidating the mechanisms underlying the effects of prior donation information on reducing subsequent contributions. Our findings deepen the theoretical understanding of individual donation behavior, providing helpful insight for practitioners designing presentation strategies for charitable crowdfunding projects.
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This study compares rapid and traditional analyses of a UK health service evaluation dataset to explore differences in researcher time and consistency of outputs.Mixed methods study, quantitatively and qualitatively comparing qualitative methods.Data from a home birth service evaluation study in a hospital in the English National Health Service, which took place between October and December 2014. Two research teams independently analysed focus group and interview transcript data: one team used a thematic analysis approach using the framework method, and the second used rapid analysis.Home birth midwives (6), midwifery support workers (4), commissioners (4), managers (6), and community midwives (12) and a patient representative (1) participated in the original study.Time taken to complete analysis in person hours; analysis findings and recommendations matched, partially matched or not matched across the two teams.Rapid analysis data management took less time than thematic analysis (43 hours vs 116.5 hours). Rapid analysis took 100 hours, and thematic analysis took 126.5 hours in total, with interpretation and write up taking much longer in the rapid analysis (52 hours vs 8 hours). Rapid analysis findings overlapped with 79% of thematic analysis findings, and thematic analysis overlapped with 63% of the rapid analysis findings. Rapid analysis recommendations overlapped with 55% of those from the thematic analysis, and thematic analysis overlapped with 59% of the rapid analysis recommendations.Rapid analysis delivered a modest time saving. Excessive time to interpret data in rapid analysis in this study may be due to differences between research teams. There was overlap in outputs between approaches, more in findings than recommendations. Rapid analysis may have the potential to deliver valid, timely findings while taking less time. We recommend further comparisons using additional data sets with more similar research teams.
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