Experiences on health-related quality of life of Jordanian patients living with heart failure: A qualitative study
Ahmad Rajeh SaifanHaneen Abu HayeahAteya Megahed IbrahimAlexandra DimitriMahmoud AlsarairehHikmat AlakashNabeel Al‐YateemDonia Elsaid Fathi ZaghamirRami A. ElshataratMuhammad Arsyad SubuZyad T. SalehSalahdein Aburuz
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Abstract:
Quantitative studies have provided valuable statistical insights into Health-Related Quality of Life (HRQoL) among patients with Heart Failure (HF), yet they often lack the depth to fully capture the nuanced, subjective experiences of living with HF particularly in the specific context of Jordan. This study explores the personal narratives of HF patients to understand the full impact of HF on their daily lives, revealing HRQoL aspects that quantitative metrics often miss. This is crucial in developing regions, where the increasing prevalence of HF intersects with local healthcare practices, cultural views, and patient expectations, providing key insights for tailored interventions and better patient care.Keywords:
Thematic Analysis
In Brazil, the clinical model has predominated in Home care (HC). A psychosocial approach is necessary for problems identified in the home environment. The objectives of this paper were to present a psychosocial approach instrument for HC patients and their families and to describe the applicability of the psychosocial model using this instrument. The instrument was applied to HC patients and their families by home healthcare professionals who were participating in a HC course. We observed that it was feasible, although clinical reasoning took precedence over psychosocial reasoning. This instrument must be validated and new research must be carried out to qualify its use in teaching and HC.
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Psychosocial distress is common in cancer patients. Although common, psychosocial distress is frequently under-diagnosed and poorly managed in the U.S. health system. This paper describes 25 in-depth telephone interviews with health care professionals working within cancer care centers. Interview questions address perception of the psychosocial services offered within their cancer care organizations. Results indicate that access to psychosocial care is frequently dependent upon the subjective judgment of busy clinicians. Information technology could improve the delivery of psychosocial care by easing the administration of psychosocial assessments and increasing clinician contact with research evidence regarding distress management.
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Psychosocial Support
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There is evidence that psychosocial issues are associated with poorer compliance and higher mortality in the post-transplant period. Thus, psychosocial assessment of candidates for transplantation is an important way of detecting early those patients who are susceptible to developing psychiatric symptoms and psychosocial difficulties during treatment. We developed a psychosocial structured interview to assess candidates for hematopoietic stem cell transplantation. The interview is a short and comprehensible instrument, requiring an average of 50 minutes to be completed.
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ABSTRACT Objective: To analyze the practice of welcoming people into psychosocial care for personcentered care. Method: A qualitative, strategic social research study based on the PersonCentered Clinical Method, conducted with 17 professionals from two Psychosocial Care Centers in the Central Region of Brazil. Data were collected using a questionnaire to characterize the profession and individual online interviews between June and August 2021. The data was subjected to thematic content analysis. Results: the thematic category “Practice of welcoming in psychosocial care” included three categories that showed what is practiced by professionals in welcoming: 1. Family issues; 2. Health issues; 3. Psychosocial issues. Final considerations: there has been progress in the welcoming practices of some professionals, which is closer to the psychosocial care model, but there is a need for ongoing education so that person-centered welcoming becomes a common action in the services.
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The study explores the psychosocial care-givers knowledge and skills on medical and psychosocial issues in Hemophilia pre-and post participation in the training program conducted in four different North Indian States. The objectives of the study is 1) To approach a cross-section of psychosocial workers and ascertain their views on the psychosocial support in Hemophilia; 2) To critically examine the views/perceptions of the psychosocial workers pre and post training workshop .3) To analyze the responses of the psychosocial workers about medical and psychosocial implications of hemophilia. 4) To identify issues, emerging from empirical evidence, which could be utilized for preparing the guidelines for the psychosocial workers. The findings showed that overall the psychosocial care-givers awareness improved post training on different subsets on the psychosocial awareness questionnaire. This indicates that regular education and updating of knowledge of the care-givers is important. A close perusal of findings suggests that age and experience were closely related to the awareness on the psychosocial issues in Hemophilia. It was found that the young respondents' awareness significantly improved post training whereas there were moderate changes in the responses of the older participants. On the whole, the change in awareness level witnessed after training illustrates that by providing adequate education and information, good results can be achieved, that will benefit PWH and their families, as well as those responsible for giving care to patients suffering from hemophilia.
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