16958 Frequent symptomatic and emotional struggles impact all aspects of quality of life in patients with psoriasis: A qualitative study
Vanina TaliercioLisa B WebberA LangnerBianca RichAbram BeshayDominik OseRachel HessJamie L. W. RhoadsAaron M. Secrest
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Psoriasis is a chronic inflammatory disease that can impair quality of life and psychological status not only in adult patients, but also in children. Few data about quality of life in children with psoriasis are available in literature. The aim of this study was to investigate the impact on the quality of life in children with psoriasis and the relationship with severity, localization, age at onset, duration and family history of psoriasis.Health-related quality of life was assessed in 110 children and adolescents with psoriasis using a validated Italian version of the Children's Dermatology Life Quality Index. Clinical and anamnestic data were collected in all patients.The mean value of Children's Dermatology Life Quality Index was 4.20±3.73. Multivariate analysis showed a statistically significant correlation of the Children's Dermatology Life Quality Index with the severity of psoriasis (P<0.001) and with the presence of psoriasis in visible areas (P<0.001) independently from the severity.Psoriasis has a remarkable social and psychological impact on life, also in children. Quality of life should be assessed in children with psoriasis also when psoriasis is mild but localized in visible areas.
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ABSTRACT A qualitative research offers insights into social, emotional and experimental phenomena. Unlike quantitative study, no structured questionnaire is involved in the data collection. Instead, series of semi-structured or unstructured interviews are conducted. Interview is one of the commonest methods of data collection used in qualitative study. It can be in the form of in-depth interview or focus group discussion (FGD). The moderator plays a crucial role in ensuring the success of the interviews conducted and the quality of information gained. This paper gives an overview on the two most common methods of data collection used in qualitative research: In-depth interviews and focus group discussion. Keywords: Interviews, Qualitative research, In-depth, Focus Group Discussion
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Abstract This paper explores and describes die different facets of facilitating an online security course. It describes the purpose of a facilitator, the qualifications necessary for a facilitator, defines the role of the facilitator, and finally describes the activities of a facilitator.
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The aim of this paper is to offer a definition of encounter and encounter groups based on the author’s understanding and experience as a participant and facilitator. Through reflection on experience as a participant, consideration is given to how the self-awareness and insights gained from this can shape the understanding of the role of facilitator, and how it enables what can be offered to groups as a facilitator. Theoretical contributions to understanding the role of the facilitator are considered. A strong relationship is proposed between experiences and gains as a participant and becoming an aware and helpful facilitator, arguing that experiences as a participant have the potential to contribute to the ability to trust both oneself and the facilitative potential of the group, tolerate uncertainty, hear others accurately and take risks.
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Patients with psoriasis may experience impaired psychosocial mental status regardless of their objectively defined disease severity. The objective clinical measures of disease that are commonly used to evaluate a patient's psoriasis fail to take into account the effect of psoriasis on patients' quality of life (QOL). As a result, a significant number of patients are dissatisfied with conventional treatments and are searching for new options. A high unmet need for effective and safe long-term therapies that can also improve patients' QOL exists in psoriasis. Alefacept, a selective biologic agent specifically designed for the treatment of psoriasis, provides improvement in both the physical (as measured by the Psoriasis Area and Severity Index) and mental (as measured by the Dermatology Life Quality Index) aspects of the disease. Additionally, alefacept is extremely well tolerated, with no negative effect on QOL, and the improvement in QOL is maintained off-treatment, which is consistent with its remittive effects on the disease. Alefacept helps fulfill the needs of psoriasis patients by providing efficacy, safety, off-treatment remissions, and improvement in QOL.
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Patients with psoriasis may experience impaired psychosocial mental status regardless of their objectively defined disease severity. The objective clinical measures of disease that are commonly used to evaluate a patient’s psoriasis fail to take into account the effect of psoriasis on patients’ quality of life (QOL). As a result, a significant number of patients are dissatisfied with conventional treatments and are searching for new options. A high unmet need for effective and safe long-term therapies that can also improve patients’ QOL exists in psoriasis. Alefacept, a selective biologic agent specifically designed for the treatment of psoriasis, provides improvement in both the physical (as measured by the Psoriasis Area and Severity Index) and mental (as measured by the Dermatology Life Quality Index) aspects of the disease. Additionally, alefacept is extremely well tolerated, with no negative effect on QOL, and the improvement in QOL are maintained off-treatment, which is consistent with its remittive effects on the disease. Alefacept helps fulfill the needs of psoriasis patients by providing efficacy, safety, off-treatment remissions, and improvement in QOL.
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BACKGROUND Psoriasis is a chronic inflammatory disease that can impair quality of life and psychological status not only in adult patients, but also in children. Few data about quality of life in children with psoriasis are available in literature. The aim of this study was to investigate the impact on the quality of life in children with psoriasis and the relationship with severity, localization, age at onset, duration and family history of psoriasis. METHODS Health-related quality of life was assessed in 110 children and adolescents with psoriasis using a validated Italian version of the Children's Dermatology Life Quality Index. Clinical and anamnestic data were collected in all patients. RESULTS The mean value of Children's Dermatology Life Quality Index was 4.20±3.73. Multivariate analysis showed a statistically significant correlation of the Children's Dermatology Life Quality Index with the severity of psoriasis (P<0.001) and with the presence of psoriasis in visible areas (P<0.001) independently from the severity. CONCLUSIONS Psoriasis has a remarkable social and psychological impact on life, also in children. Quality of life should be assessed in children with psoriasis also when psoriasis is mild but localized in visible areas.
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