Meaningful and Measurable Health Domains in Huntington’s Disease: Large-Scale Validation of the Huntington’s Disease Health-Related Quality of Life Questionnaire Across Severity Stages
Aileen K. HoMike HortonG. Bernhard LandwehrmeyerJean‐Marc BurgunderAlan TennantLorna DownieRoisin JackKirsty MathesonZosia MiedzybrodzkaD. O. RaeSheila A. SimpsonFiona SummersAlexandra UreVivien VaughanShahbana AkhtarJenny CrooksAdrienne CurtisJenny de SouzaJohn PiedadHugh RickardsJan WrightElizabeth CoulthardLouise GethinBeverley HaywardKasia SieradzanAbigail WrightRoger A. BarkerDeidre O’KeefeAnna GerrtizKate FisherAnna GoodmanSusan HillSarah L. MasonRachel SwainNatalie Valle GuzmanMonica BusseCynthia ButcherJenny CallaghanStephen B. DunnettCatherine ClenaghanRuth FullamSarah HuntLesley JonesUna JonesHanan KhalilSara MinsterMichael J. OwenKathleen PriceJenny TownhillAnne RosserDavid GoudieLindsay BuchananP. McFadyenAlison TonnerAnne-Marie TaylorMaureen P. EdwardsCarrie HoMarie McGillMary PorteousPauline PearsonTimothy HarrowerSarah IrvinePeter BrockieJillian FosterNicola JohnsSue McKenzieJean RotheryGareth ThomasShona YatesCatherine DeithJane IrelandStuart J. RitchiePauline BrownLiz BurrowsAmy FletcherAlison HardingKaye HarrisonFiona LaverMark SilvaAileen ThomsonCarol ChuCarole EvansDeena GallentreeStephanie HamerAlison KrausIvana S. MarkováAshok RamanLiz RowettAlyson AndrewJulie A. FrostRupert NoadJeremy CosgroveDeena GallantreeStephanie HamerEmma HobsonStuart W. JamiesonAlison KrausMandy LongthorpeIvana S. MarkováHannah MusgraveCaroline PeacyAshok RamanLiz RowettJean ToscanoSue WildPam YardumianCarole ClaytonHeather DippleDawn Freire-PatinoCaroline HallamJulia MiddletonSundus AlusiRhys DaviesKevin FoyEmily GerransLouise PateUruj AnjumJ.W.W. CoeberghCharlotte EddyNayana LahiriMeriel McEntagartMichael J. PattonMaria PetersonSarah RoseThomasin AndrewsAndrew DoughertyCharlotte GoldingFred KavalierHana LaingAlison LashwoodDene RobertsonDeborah RuddyAlastair SanthouseAnna WhaiteThomasin AndrewsStefanie GoslingStefania BrunoElvina ChuKaren A. DohertyCharlotte GoldingSalman HaiderDavina J. Hensman MossNayana LahiriMonica J. LewisMarianne NovakAakta PatelNicola J. RobertsonElisabeth RosserSarah J. TabriziRachel TaylorThomas T. WarnerEdward J. WildNatalie ArranJudith BekJenny CallaghanDavid CraufurdRuth FullamMarianne HareLiz Livingston HowardSusan HusonLiz JohnsonMary Pat JonesAshok KrishnamoorthyHelen MurphyEmma OughtonLucy Partington-JonesDawn RogersAndrea SollomJulie S. SnowdenCheryl StopfordJ. C. ThompsonIris Trender‐GerhardNichola VerstraelenLeann WestmorelandG.R. CassLynn DavidsonJill DavisonNeil FullertonK. HolmesSuresh KomatiSharon M. McDonnellZeid MohammedK.E. MorganL. SavageBaldev SinghJoshua WoodAndrea H. NémethGill SiudaRuth A. ValentineK. DixonRichard ArmstrongJohn BurnRebecca WeekesJanet CravenWendy BaileyCaroline ColemanDiane Haig-BrownSteve SimpsonMarianne HareTahir MajeedNicola VerstraelenRichard ArmstrongK. DixonW. A. BarrettAileen K. HoOliver BandmannAlyson BradburyHelen FairtloughKay FillinghamIsabella FoustanosPaul R. GillMbombe KazokaKirsty L O'DonovanLouise NevittNadia PeppaOliver QuarrellCat TaylorKatherine TidswellChristopher KippsLesley MacKinnonVeena R. AgarwalElaine HaywardKerry GunnerKayla HarrisMary Ann AndersonM. HeywoodLiane KeysSarah SmalleyGeorge El-NimrAllison DuffellSue WoodKaren KennedyLesley GowersKingsley PowellPamela BethwaiteRachel EdwardsKathleen P. FullerMichelle PhillipsWalter H. BucherBeatrice De SchepperJohn EdenGeorge El-NimrVictor HendrikxAlis HughesDiana KingUrsula KleibrinkRita Kuttruff-WilschutAnne Lenon-BirdChristiane LohkampMarie-Odile PerrousseauxA. MartinezLilliane RapailleHelen SantiniPavla ŠašinkováBeverley SoltysiakStephen M. SmithHans van der LeerL.B. van der MeerMichael WooldridgePaola Zinzi
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The versions of the Oswestry disability questionnaire (ODQ) is regarded as one of the most extensively used condition-specific instrument measuring disability resulting from low back pain. It has been shown to have adequate psychometrics, reliability, validity, and responsiveness as a whole, yet the summated total score of the instrument often provide little information to rehabilitation clinicians. A keyform analysis based on Rasch measurement model is an innovative way of illustrating the specific test items that an individual may or may not perform. By applying the keyform of the Rasch measurement model to the ODQ, rehabilitation clinicians may able to select more challenging ODQ items matching an individual’s ability and document them as attainable treatment goals. The results demonstrated how a keyform analysis assist to setting possible goals for the treatment of individuals with low back pain. Forty-two individuals with low back pain were recruited from rehabilitation clinics in Gainesville, Florida. A series of Rasch analyses on the 10 items of the ODQ were performed using Winsteps software. The performance of two individuals on those 10 items was illustrated on the keyform. The keyform analysis of the Rasch measurement model may be translated into a useful tool
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This research aimed to develop a short form of the Self-assessment Practices Scale (SaPS). Guided by a process model of self-assessment, the SaPS scale was designed to assess the actions students engage in during the self-assessment process. The data used for developing the original 20-item SaPS (SaPS-20), i.e., 1416 Hong Kong students ranging from Primary 4 to Secondary 3, were reanalyzed, and a 12-item short form (SaPS-SF) was developed. Factor analysis and Rasch analysis were applied in complementary ways to examine the psychometric properties of the SaPS-SF. The results showed that factor structure of the original scale held in the SaPS-SF, and all items fitted the Rasch model requirements sufficiently and measured the constructs as theorized. The findings presented in this study facilitate the measurement of self-assessment practice in a parsimonious and effective way.
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In this study, we developed the Brief Moral Decision-Making Questionnaire (BrMoD) as a standardized brief form of the dilemmas compiled by Greene and colleagues (Greene, Sommerville, Nystrom, Darley, & Cohen, 2001). An initial Rasch analysis was conducted over responses to 60 dilemmas to retain the most appropriate items. The psychometric properties of the 32-item brief instrument were determined in a community sample of 133 individuals using analyses from both the Rasch model and the classical test theory. The BrMoD scores showed appropriate reliability and construct validity. Differences between dilemma categories proposed by Greene et al. were observed in the BrMoD by measuring the difficulty of decisions and response times of the participants. In addition, there was no differential item functioning by the demographic variables. Therefore, the BrMoD is a good tool for assessing moral decision making in research or professional fields.
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Abstract We examined the psychometric properties of the PTSD Checklist (PCL), a self‐report instrument designed to assess symptoms of posttraumatic stress disorder. Three hundred ninety‐two participants recruited in a university setting completed the PCL in addition to several well‐established self‐report instruments designed to assess various forms of psychopathology (e.g., depression, general anxiety, PTSD). Ninety participants returned for readministration of selected measures. Findings provided support for psychometric properties of the PCL, including internal consistency, test‐retest reliability, convergent validity, and discriminant validity. Additional strengths of the PCL are discussed.
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The DyNaChron (Dysfonctionnement Nasal Chronique) questionnaire is a self-reporting 78-item instrument assessing six symptoms and their consequences of chronic nasal dysfunction. Patients complete items of a symptom domain only when it is present but in case the patient presents several or all symptoms, its length can limit its use. Here, we aimed to optimize, or shorten, the DyNaChron for clinical use.A total of 640 patients in 14 rhinology outpatient clinics all over France completed the original DyNaChron questionnaire before the first rhinologic clinic and 15 days later. The optimization process involved Rasch analysis and then qualitative content analyses. Rasch analysis flagged items with a floor/ceiling effect or with important differential item functioning and an expert committee decided whether to retain the flagged items on the basis of clinical importance and statistical characteristics. The psychometric properties of the optimized version were studied according to classical test theory and Rasch analysis.Rasch analysis revealed 4 items with underfit, 6 with an extreme score, 2 that were highly locally dependent and 16 with differential item functioning which 5 of these 16 items were retained after content analysis. In total, 19 flagged items were removed. Factorial analysis confirmed the preservation of the initial instrument structure in the optimized scale; psychometrics properties and scale calibration were the same as or better than the original version.The shortened DyNaChron optimizes the quality of assessment by deleting redundant items and reduces the burden on respondents; the structure is preserved and the psychometrics properties are improved.
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Anxiety disorders in youth are frequently underdiagnosed and untreated, partly due to a lack of screening in primary care. The Generalized Anxiety Disorder 7-item (GAD-7) scale is a brief self-report measure designed to screen for anxiety in primary care settings. However, little is known about the psychometrics of this scale with adolescents.Participants included 579 youth age 11 to 17 years who received screening for depression in a primary care setting through a web-based application, VitalSign6, over a 4-year period. Psychometric analyses were completed based on classical test theory (CTT) and item response theory (IRT).Using CTT and IRT methods, the GAD-7 has a unidimensional structure with good psychometric properties. In addition, the IRT analysis demonstrates that items 1 and 2 are strongly associated with the total score, and thus are good choices as a 2-item screening tool. Convergent validity was demonstrated, with high correlations between the GAD-7 and other measures of anxiety, and discriminant validity was also demonstrated, with low correlations to measures of other psychological states.This psychometric evaluation of the GAD-7 provides support for the utility of this measure with adolescents. The GAD-2 is a good estimate of GAD-7 total score.
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Aging has determined a demographic shift in the world, which is considered a major societal achievement, and a challenge. Aging is primarily a subjective experience, shaped by factors such as gender and culture. There is a lack of instruments to assess attitudes to aging adequately. In addition, there is no instrument developed or validated in developing region contexts, so that the particularities of ageing in these areas are not included in the measures available. This paper aims to develop and validate a reliable attitude to aging instrument by combining classical psychometric approach and Rasch analysis. Pilot study and field trial are described in details. Statistical analysis included classic psychometric theory (EFA and CFA) and Rasch measurement model. The latter was applied to examine unidimensionality, response scale and item fit. Sample was composed of 424 Brazilian old adults, which was compared to an international sample (n = 5238). The final instrument shows excellent psychometric performance (discriminant validity, confirmatory factor analysis and Rasch fit statistics). Rasch analysis indicated that modifications in the response scale and item deletions improved the initial solution derived from the classic approach. The combination of classic and modern psychometric theories in a complementary way is fruitful for development and validation of instruments. The construction of a reliable Brazilian Attitudes to Aging Questionnaire is important for assessing cultural specificities of aging in a transcultural perspective and can be applied in international cross-cultural investigations running less risk of cultural bias.
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Abstract Background Reliable and valid measurement is the foundation of evidence-based practice. The self-administered Foot Health Assessment Instrument (S-FHAI) was recently developed to measure patients’ evaluations of their own foot health. Evidence regarding the psychometric properties of the S-FHAI is limited. The aim of this study was to investigate those properties by using a Rasch analysis. Methods This methodological study analysed secondary data that was collected from nurses ( n = 411) in 2015. The psychometric properties of the S-FHAI were evaluated using the Rasch model. Unidimensionality was analysed first, followed by item functioning, person misfit and differential item functioning (DIF). Results The S-FHAI demonstrated evidence of unidimensionality, with an acceptable item fit according to the Rasch model. Person fit and person separation were low, however, indicating restricted separation among different respondents. Item separation was high, demonstrating clear discrimination between the items. No DIF was detected in relation to gender, but significant DIF was demonstrated in relation to age for 6 of the 25 items. Conclusions The S-FHAI has potential for use in investigating self-reported foot health. The Rasch analysis revealed that the psychometric properties of the instrument were acceptable, although some issues should be addressed to improve the scale. In future, it may be beneficial to analyse the sensitivity of the items and to test the S-FHAI in more diverse patient populations.
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This study investigated the psychometrics of a recently developed global rating measure of videotaped parent-infant interaction, the Manchester Assessment of Caregiver–Infant Interaction (MACI), in a normative sample. Inter-rater reliability, stability over time, and convergent and discriminant validity were tested. Six-minute play interactions were blind-rated by trained coders in 147 healthy mother-infant dyads at 3–10 months postpartum using the MACI; 51% were re-assessed 4 or 7 months later. Infant cognitive functioning, language and temperament, parent-reported infant warmth and invasion, parental mood, and the parent’s own recalled experiences of being parented were measured. We report the internal psychometrics of the MACI, evidence of stability as predicted, and inter-rater reliability. MACI caregiver sensitive responsiveness showed convergent validity with parental state of mind (mood at 3–4 months; report of own childhood care and overprotection), while MACI infant affect (but not the caregiver scales) was associated with parent-rated infant warmth. All MACI scales showed discriminant validity with concurrent cognitive and language developmental status, and most temperament dimensions. In conclusion, the MACI demonstrates utility, reliability and preliminary validity data in a normative sample, which complements previous work using the MACI. Follow-up is needed to test predictive validity. The findings inform further improvements to the tool, and may guide those looking for a relatively brief way to examine the global qualities of parent, infant and dyadic interaction.
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