The influence of unmet supportive care needs on anxiety and depression during cancer treatment and beyond: a longitudinal study of survivors of haematological cancers
Devesh OberoiVictoria WhiteJohn F. SeymourH. Miles PrinceSimon J. HarrisonMichael JeffordIngrid WinshipDavid HillDamien BoltonAnne KayJeremy MillarNicole Wong DooGraham G. Giles
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Depression
Longitudinal Study
Cross-sectional study
Psychosocial distress is common in cancer patients. Although common, psychosocial distress is frequently under-diagnosed and poorly managed in the U.S. health system. This paper describes 25 in-depth telephone interviews with health care professionals working within cancer care centers. Interview questions address perception of the psychosocial services offered within their cancer care organizations. Results indicate that access to psychosocial care is frequently dependent upon the subjective judgment of busy clinicians. Information technology could improve the delivery of psychosocial care by easing the administration of psychosocial assessments and increasing clinician contact with research evidence regarding distress management.
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In Brazil, the clinical model has predominated in Home care (HC). A psychosocial approach is necessary for problems identified in the home environment. The objectives of this paper were to present a psychosocial approach instrument for HC patients and their families and to describe the applicability of the psychosocial model using this instrument. The instrument was applied to HC patients and their families by home healthcare professionals who were participating in a HC course. We observed that it was feasible, although clinical reasoning took precedence over psychosocial reasoning. This instrument must be validated and new research must be carried out to qualify its use in teaching and HC.
Health Professionals
Family health
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Effects of social support and self‐efficacy on the psychosocial adjustment of Korean ostomy patients
This study aims to test which factors influence and aid the psychosocial adjustment of patients with an ostomy and to provide data for the development of programmes for the self‐management of and psychosocial adjustment to intestinal stomas. A total of 150 ostomy patients were recruited between December 1, 2017 and March 26, 2018 in Korea and completed self‐report questionnaires. Data of 25 participants were excluded, resulting in a sample size of 125 participants. Factors, including social support subtypes and self‐efficacy, that influence the psychosocial adjustment were analysed using Cox's regression. Of the factors that influenced the adjustment groups after adjusting for time, the following subtypes of social support were found to influence the patients' adjustment: the patients' psychosocial adjustment increased by 0.4 when the level of medical staff support increased by 1 (Exp[B] = 1.04, P = 0.007), and adjustment decreased by 0.3 when the level of family support increased by 1 (Exp[B] = 0.97, P < 0.001). As medical staff support who have expertise exert more of an influence on the psychosocial adjustment of ostomy patients than self‐efficacy and family support, psychosocial adjustment programmes that reflect this and nurses specialised in care for ostomy patients are required.
Psychosocial Support
Family Support
Self-Efficacy
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Psychosocial Support
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There is evidence that psychosocial issues are associated with poorer compliance and higher mortality in the post-transplant period. Thus, psychosocial assessment of candidates for transplantation is an important way of detecting early those patients who are susceptible to developing psychiatric symptoms and psychosocial difficulties during treatment. We developed a psychosocial structured interview to assess candidates for hematopoietic stem cell transplantation. The interview is a short and comprehensible instrument, requiring an average of 50 minutes to be completed.
Psychosocial Support
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This study was performed to assess perceived social support and psychosocial adjustment in patients with coronary heart disease.Participants were 250 patients referred to the cardiology outpatient clinic of a university hospital in Ankara, Turkey, between December 2013 and March 2014. Data were collected using a participant information form, the Multidimensional Scale of Perceived Social Support, and the Psychosocial Adjustment to Illness Scale-Self-Report. Data were analysed using frequencies, percentages, mean scores, and Pearson's correlation coefficient.Patients' mean perceived social support scores were relatively low and patients' mean scores for psychosocial adjustment considered to be poor. Subgroups in the psychosocial adjustment and social support scales were significantly associated.This study's results indicate that patients' social support is linked to their psychosocial adjustment to coronary heart disease. As psychosocial adjustment is inhibited in patients who lack sufficient social support, sources of social support of patients should be identified and facilitated.
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The study explores the psychosocial care-givers knowledge and skills on medical and psychosocial issues in Hemophilia pre-and post participation in the training program conducted in four different North Indian States. The objectives of the study is 1) To approach a cross-section of psychosocial workers and ascertain their views on the psychosocial support in Hemophilia; 2) To critically examine the views/perceptions of the psychosocial workers pre and post training workshop .3) To analyze the responses of the psychosocial workers about medical and psychosocial implications of hemophilia. 4) To identify issues, emerging from empirical evidence, which could be utilized for preparing the guidelines for the psychosocial workers. The findings showed that overall the psychosocial care-givers awareness improved post training on different subsets on the psychosocial awareness questionnaire. This indicates that regular education and updating of knowledge of the care-givers is important. A close perusal of findings suggests that age and experience were closely related to the awareness on the psychosocial issues in Hemophilia. It was found that the young respondents' awareness significantly improved post training whereas there were moderate changes in the responses of the older participants. On the whole, the change in awareness level witnessed after training illustrates that by providing adequate education and information, good results can be achieved, that will benefit PWH and their families, as well as those responsible for giving care to patients suffering from hemophilia.
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Over the past ten years, the concept of psychosocial screening has received a great deal of attention. Guidelines, recommendations, and standards have been developed to encourage or require that all patients be screened for their distress at the time of diagnosis or when patients commence care in a cancer center for the first time. However, the concept of psychosocial screening has long history in the cancer literature.
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