Ethical issues in the biomedical frontier
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Abstract:
In this article the author discusses the relationship between science/technology and ethics,the basic principles of bioethics and the difference between morality and ethics,and then addresses ethical issues in stem cell research,gene therapy,reproductive genetics,xenotransplantation,biomedical research and clinical trials.Keywords:
Bioethics
Xenotransplantation
Frontier
Research Ethics
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Medical genetics
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Numerous ethical issues are associated with the collection, recording, and utilization of genetic information. We review here selected ethical issues relating to the nature of genetic counseling, the disclosure of genetic information, and prenatal diagnosis. We emphasize that ethical issues occur not only in the clinician-client relationship, but with respect to other genetics service providers including businesses, hospitals, and the government, and further, that these ethical issues exist in a social, political, and legal context.
Medical genetics
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Xenotransplantation
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Ethical guidance for genomic research is increasingly sought and perceived to be necessary. Although there are pressing ethical issues in genomic research – concerning for example the recruitment of patients/participants; the process of taking consent; data sharing; and returning results to patients/participants – there is still limited useful guidance available for researchers/clinicians or for the research ethics committees who review such projects. This report outlines the ethical principles and guidance for genomic research co-produced with stakeholders during two workshops which took place in the UK between November 2016 and May 2017. The stakeholders involved in these workshops included: healthcare professionals, genomic research teams, academics, patients, biobank managers, and representatives from the Health Research Authority (HRA), NHS Research Ethics Committees, patient support groups, pharmaceutical industry, and health policy think tanks. The co-produced principles and guidance are specifically aimed at researchers/clinicians and members of NHS Research Ethics Committees, and are formulated with the intention to be clear and accessible, both in terms of content and language, to these groups.
Research Ethics
Ethics committee
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