Distinct health behavior and psychosocial profiles of young adult survivors of childhood cancers: a mixed methods study
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In Brazil, the clinical model has predominated in Home care (HC). A psychosocial approach is necessary for problems identified in the home environment. The objectives of this paper were to present a psychosocial approach instrument for HC patients and their families and to describe the applicability of the psychosocial model using this instrument. The instrument was applied to HC patients and their families by home healthcare professionals who were participating in a HC course. We observed that it was feasible, although clinical reasoning took precedence over psychosocial reasoning. This instrument must be validated and new research must be carried out to qualify its use in teaching and HC.
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Psychosocial distress is common in cancer patients. Although common, psychosocial distress is frequently under-diagnosed and poorly managed in the U.S. health system. This paper describes 25 in-depth telephone interviews with health care professionals working within cancer care centers. Interview questions address perception of the psychosocial services offered within their cancer care organizations. Results indicate that access to psychosocial care is frequently dependent upon the subjective judgment of busy clinicians. Information technology could improve the delivery of psychosocial care by easing the administration of psychosocial assessments and increasing clinician contact with research evidence regarding distress management.
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There is evidence that psychosocial issues are associated with poorer compliance and higher mortality in the post-transplant period. Thus, psychosocial assessment of candidates for transplantation is an important way of detecting early those patients who are susceptible to developing psychiatric symptoms and psychosocial difficulties during treatment. We developed a psychosocial structured interview to assess candidates for hematopoietic stem cell transplantation. The interview is a short and comprehensible instrument, requiring an average of 50 minutes to be completed.
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The study explores the psychosocial care-givers knowledge and skills on medical and psychosocial issues in Hemophilia pre-and post participation in the training program conducted in four different North Indian States. The objectives of the study is 1) To approach a cross-section of psychosocial workers and ascertain their views on the psychosocial support in Hemophilia; 2) To critically examine the views/perceptions of the psychosocial workers pre and post training workshop .3) To analyze the responses of the psychosocial workers about medical and psychosocial implications of hemophilia. 4) To identify issues, emerging from empirical evidence, which could be utilized for preparing the guidelines for the psychosocial workers. The findings showed that overall the psychosocial care-givers awareness improved post training on different subsets on the psychosocial awareness questionnaire. This indicates that regular education and updating of knowledge of the care-givers is important. A close perusal of findings suggests that age and experience were closely related to the awareness on the psychosocial issues in Hemophilia. It was found that the young respondents' awareness significantly improved post training whereas there were moderate changes in the responses of the older participants. On the whole, the change in awareness level witnessed after training illustrates that by providing adequate education and information, good results can be achieved, that will benefit PWH and their families, as well as those responsible for giving care to patients suffering from hemophilia.
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Over the past ten years, the concept of psychosocial screening has received a great deal of attention. Guidelines, recommendations, and standards have been developed to encourage or require that all patients be screened for their distress at the time of diagnosis or when patients commence care in a cancer center for the first time. However, the concept of psychosocial screening has long history in the cancer literature.
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A methodology for the systematic assessment and treatment of psychosocial problems of cancer patients was developed by a research team investigating the psychosocial impact of cancer on the adult patient. The assessment instrument is a structured problem-oriented interview designed to reveal a patient's self-report of 122 cancer-related psychosocial problems which was administered at several points during the course of a patient's disease. Psychosocial intervention was based on the results of this assessment and was delivered by "oncology counselors." Actual contacts with the patient were recorded in a "Problem Oriented Record." A case study is presented in order to demonstrate the usefulness of this approach to both psychosocial assessment and intervention with the cancer patient.
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This study investigated the effects of psychosocial rehabilitation programs provided by a psychosocial rehabilitation center on the levels of self-efficacy for mentally disabled persons. We followed the study subjects for 2 yr in order to examine whether the psychosocial rehabilitation programs had a positive impact on their levels of self-efficacy.There were 18 subjects in the experimental group and they received all the psychosocial rehabilitation services available at the psychosocial rehabilitation center for 2 yr. In the comparison group, there were 17 participants who voluntarily refused to participate in the psychosocial rehabilitation programs.The results indicated that the psychosocial rehabilitation programs were effective in increasing the levels of the self-efficacy total score and specific self-efficacy score.The overall study results indicated that psychosocial rehabilitation programs provided by a psychosocial rehabilitation center had a positive impact on increasing the levels of self-efficacy for mentally disabled persons.
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