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    Recent public discussions suggest that there is much disagreement about the way autism is and should be described. This study sought to elicit the views and preferences of UK autism community members - autistic people, parents and their broader support network - about the terms they use to describe autism. In all, 3470 UK residents responded to an online survey on their preferred ways of describing autism and their rationale for such preferences. The results clearly show that people use many terms to describe autism. The most highly endorsed terms were 'autism' and 'on the autism spectrum', and to a lesser extent, 'autism spectrum disorder', for which there was consensus across community groups. The groups disagreed, however, on the use of several terms. The term 'autistic' was endorsed by a large percentage of autistic adults, family members/friends and parents but by considerably fewer professionals; 'person with autism' was endorsed by almost half of professionals but by fewer autistic adults and parents. Qualitative analysis of an open-ended question revealed the reasons underlying respondents' preferences. These findings demonstrate that there is no single way of describing autism that is universally accepted and preferred by the UK's autism community and that some disagreements appear deeply entrenched.
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    At the 2019 strategic planning meeting the International Society for Autism Research (INSAR) board discussed the question of appropriate language to be used when speaking or writing about autism or affected individuals. Board members articulated a wide range of views on this subject, making clear that there is no single simple answer. This commentary was inspired by that discussion. It is by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism. Autism Res 2019, 12: 1004-1006. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: How should researchers talk about autism? Personal reflections on writing and speaking about autism, with particular regard for affected individuals, be they autistic people, people with autism, or family members. This commentary is authored by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism.
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    'Something is Wrong with Our Child'. Families' Needs: Met and Unmet. Diagnosis and Autism. Diagnostic Confusions and Disorders Presenting Like Autism. The Effects of Autism on Parents: Part I. The Effects of Autism on Parents: Part II. Families and Challenging Behaviour. Educational and Other Strategies. Autism and Growing Up. References. Index.
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    Autism is an innate or developmental difference that occurs in the first years of life. While the number of individuals with autism in the world is increasing day by day, the importance of what should be known about autism also increases. However, it is still not possible to say that this information is sufficient. The definition of individuals with autism and their health problems, what autistic individuals do to express themselves, and who the individuals with autism are and their representatives are important. Some basic points such as how to raise awareness about the lives of individuals with autism have still not been overcome. The main theme of this study is how the media addresses the issue of individuals with autism, their problems, and needs. The research question of the study is how to read the reflections on autism through the media.
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    Acknowledgments Introduction1.A Philosophical Introduction to Autism / Voices of Autism: Jim Sinclair 2. The Value of an Autistic Life / Voices of Autism: Wendy Lawson 3: Autism and Moral Normative Theories / Voices of Autism: Gunilla Gerland 4. Autism and Genetic Technologies / Voices of Autism: Donna Williams 5. Human Research on Persons with Autism / Voices of Autism: Temple GrandinBibliography Index
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