IDDF2018-ABS-0223 An eastern chinese multicenter survey on health-related quality of life in inflammatory bowel disease patients and disease-related perception of caregivers

Background Inflammatory bowel disease (IBD) may impair patients‘ health-related quality of life (HRQOL) and impose burdens on caregivers. We aim to survey HRQOL including demographic characteristics of IBD patients and to evaluate the disease-related perception of their caregivers in East China. Methods Patients above 18 years old with established Crohn’s disease (CD) or ulcerative colitis (UC) from 5 medical centres in East China between December 2016 and July 2017 were enrolled. Patients‘ detailed demographic and clinical information were documented. Demographic data of the investigated regions were extracted from China Population and Employment Statistics Yearbook 2016 for comparison. Patients‘ HRQOL was assessed by short IBD questionnaire (SIBDQ) and patient-reported 0–10 score (IBD-10). The major caregiver of each patient was surveyed by IBD-10 to estimate patient‘s condition from caregiver’s viewpoint. Results A total of 601 IBD patients were included in this study. The proportion of post-secondary school education (51.4% vs 28.1%, p Conclusions Higher educational attainment and unemployment rate exist among IBD patients in East China. Patients‘ HRQOL declines and correlates with multiple negative factors. Caregivers may form similar disease-related perception just as patients do.