Making Decisions About Stopping Medicines for Well‐Controlled Juvenile Idiopathic Arthritis: A Mixed‐Methods Study of Patients and Caregivers

OBJECTIVE: Improved treatments for juvenile idiopathic arthritis (JIA) have increased remission rates. We investigated how patients and caregivers make decisions about stopping medications for well-controlled JIA. METHODS: We performed a mixed-methods study of caregivers and patients affected by JIA, recruited through social media and flyers and selected by purposive sampling. Participants discussed their experiences with JIA, medications, and decision-making through recorded telephone interviews. Of 44 interviewees, 20 were patients (50% <18 years) and 24 were caregivers (50% of children