Development and Evaluation of ADCareOnto - an Ontology for Personalized Home Care for Persons with Alzheimer's Disease

Alzheimer's disease (AD) poses serious challenges for both patients and their family caregivers. In this paper we present the design, development, and evaluation of an ontology model, ADCareOnto, to assist family caregivers providing personalized care for persons living with AD. ADCareOnto includes top-level categories, concepts, and relations about informal care for persons with AD. To enable personalization in care, ADCareOnto also includes a comprehensive user profile modeling that includes various characteristics of both AD patients and caregivers. AD care thus can be tailored based on the user's unique concerns, preferences, and needs. We verified and validated the design of ADCareOnto and evaluated it using a real use case. The results support the quality of its content and techniques.