Informatics methodology for the rapid, validated development of clinical research forms in CARRAnet: incorporating user-centered design into the Delphi technique

Purpose CARRAnet is a multicenter and multiple disease national registry in pediatric rheumatology with up to sixty sites participating. The CARRAnet registry is designed as a framework from which to drive clinical research and creation of evidence based treatment protocols. Success of the project relies on the continued participation of the clinical sites. User centered design is an informatics technique for