La gestion des parcours patients en Onco-sénologie : une approche exploratoire à partir de l’expérience partagée de la maladie sur les médias sociaux

In a context where cancer is the leading cause of death in France, there is a real interest in identifying the perception that patients have of their care path in order to improve the perceived quality of their experience. It could ultimately help to act positively on the acceptance by the patient of a difficult situation to live and now considered as chronic. Based on an analysis of 956 speeches of breast cancer patients posted on a discussion forum, the aim of this research is to reconstruct the path experienced by patients in their experience of the disease. This contribution explores the three key stages in the pathway of these patients. It highlights a myriad of critical touch points leading to an alteration in the perception of care on which the institutions need to pay special attention. This research also highlights two important extra-pathway stages: the pre-pathway stage and the post-pathway stage.