Seguimiento ambulatorio de pacientes con lupus en una unidad de enfermedades autoinmunes sistémicas

espanolObjetivos: Describir los sintomas referidos por los pacientes con lupus eritematoso sistemico (LES) durante su seguimiento ambulatorio en una Unidad de Enfermedades Autoinmunes Sistemicas (UEAS), la relacion de estos con el propio LES o con otras patologias y la necesidad de derivacion a otros especialistas. Material y Metodos: Se realizo un analisis descriptivo prospectivo durante 5 meses que incluyo a 112 pacientes con LES en seguimiento ambulatorio por una UEAS. Se valoro la sintomatologia padecida desde la ultima revision, tuviera o no relacion con el LES y la prevalencia de pacientes derivados a otros especialistas. Resultados: Ochenta (71.4%) pacientes presentaron sintomatologia no explicable por el LES, destacando la artralgias por artrosis y el sindrome ansioso-depresivo. Presentaron sintomas asociados al LES 32 (23.5%) pacientes, siendo el brote articular en 10 (8.3%) pacientes, el brote renal en 8 (7.1%) y el brote cutaneo en 5 (4.4%) los mas frecuentes. Por ultimo, fueron derivados a otros especialistas 10 (8.3%) pacientes. Conclusiones: Durante el seguimiento ambulatorio en una UEAS de los pacientes con LES, la prevalencia de consultas por sintomas y enfermedades no relacionadas con el LES podria ser superior a aquellas atribuibles al propio LES, subrayando la necesidad de una vision global y multidisciplinar en el manejo de estos pacientes. EnglishObjectives: To describe the symptoms referred by the patients with systemic lupus erythematosus (SLE) during their ambulatory follow-up by an Autoinmune Disease Unit (ADU), the relationship between them and SLE itself or with other clinic entities and the need to refer lupus patients to other specialists. Methods: We performed a descriptive analysis during 5 months that included 112 patients with SLE with ambulatory follow-up by an ADU. We assessed the symptomatology suffered by the patients since the last visit, related or not to SLE, and the prevalence of patients referred to other specialists. Results: Eighty (71.4%) patients had symptoms no explainable by SLE, mainly due to arthralgias secondary to osteoarthrosis and anxiety-depressive syndrome. Thirty-two (23.5%) patients had symptoms related to SLE, the most frequent of which were articular flare in 10 (8.3%) patients, lupus nephritis in 8 (7.1%) and skin flare in 5 (4.4%). Finally, ten (8.3%) patients were referred to other specialists. Conclusions: During the ambulatory follow-up of patients with SLE in an ADU, the frequency of consultations for symptoms and illnesses no related to SLE may be higher than those secondary to SLE, highlighting the need of a global and multidisciplinary management of these patients.