Análisis de la calidad de vida en personas con el Síndrome de Wolfram y de sus cuidadores: aspectos sociológicos y psicológicos

Wolfram Syndrome (WS) is a “rare” disease, neurodegenerative and progressive. This study assesses the quality of life of persons with SW and their caregivers. The sample consisted of 27 affected and 31 caregivers. The results showed statistically significant differences between the groups studied. Persons affected by WS have a better life quality in relationship with the absence of work overload and free time, and in the general satisfaction. The caregivers present a better quality of life in relationship with the social support. The data demonstrate the need to create intervention programs that allow improving their quality of life.