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The lived experience of parents with children diagnosed with mucopolysaccharidosis waiting for enzyme replacement therapy
The lived experience of parents with children diagnosed with mucopolysaccharidosis waiting for enzyme replacement therapy
2008
Maria Maione
Karen Spalding
Sherry Espin
Keywords:
Mucopolysaccharidosis
Enzyme replacement therapy
Physical therapy
Medicine
Pediatrics
Surgery
lived experience
Correction
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