A systematic review and meta-integration of experience of parents caring for children with congenital heart disease

Objective To systematically evaluate the experience of parents caring for children with congenital heart disease (CHD) . Methods Qualitative researches on experience of parents caring for children with CHD were retrieved in Chinese National Knowledge Infrastructure (CNKI) , VIP, WanFang Data, Chinese Biomedical Database, Web of Science, Embase, Cochrane Library, PubMed, Joanna Briggs Institute Library and CINAHL by computer from building database to July 2019. The "Australia JBI Critical Appraisal Tool for qualitative studies" was used to evaluation and convergent integration was used to the result integration. Results A total of 8 researches were included and 29 clear results were extracted. Similar results were summarized into 8 new categories and synthesized into two integrative results. The first integrative result: roles of caregiver grew through self-regulation; the second integrative result: caregivers were with gratitude and hoped to get social support. Conclusions Nurses should pay attention to mental state of parents of CHD children, provide the necessary care knowledge and skill instruction, help parents to fill the role of caregiver to improve the family-centered care quality in CHD children. Key words: Heart defects, congenital; Caregivers; Care experience; Qualitative research; Meta-integration