When a Little May Be Just Enough? Caring for People With Swallowing Difficulties at the End of Life, and Their Caregivers

2016 
Nutrition and hydration are emotive topics in many fields of health care. This can present particular challenges towards the end of life where reduced hydration and nutritional needs are a natural part of dying. Speech-language pathologists (SLPs) are increasingly involved in the care of dying patients. It is essential that they work as part of a dedicated, multidisciplinary team delivering a comprehensive package of specialist palliative care. In this paper, we will review the role of the SLP at the end of life and present information that will support the SLP to recognise and understand dying, and how medical and SLP interventions may compound rather than relieve symptoms. It is paramount that interventions are ethically sound and decision making is shared, respecting the autonomy of patients. In the event patients lack capacity, any advance directives/decisions and statements should be considered in consultation with caregivers. At the end of life, the focus of our intervention may shift from the patie...
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