Initial report of the osteogenesis imperfecta adult natural history initiative.

Laura L. Tosi,Matthew Oetgen,Marianne Floor,Mary Beth Huber,Ann M. Kennelly,Robert McCarter,Melanie Rak,Barbara Simmonds,Melissa Simpson,Carole A. Tucker,Fergus McKiernan

Initial report of the osteogenesis imperfecta adult natural history initiative.

2015

Laura L. Tosi
Matthew Oetgen
Marianne Floor
Mary Beth Huber
Ann M. Kennelly
Robert McCarter
Melanie Rak
Barbara Simmonds
Melissa Simpson
Carole A. Tucker
Fergus McKiernan

Background A better understanding of the natural history of osteogenesis imperfecta (OI) in adulthood should improve health care for patients with this rare condition.

Keywords:

Internal medicine
Osteogenesis imperfecta
Endocrinology
Biology
Human genetics
Patient-centered outcomes
Health care
Physical therapy
Young adult
Natural history
Genetics
pharmacology toxicology
Gerontology
Quality of life

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