Learning and Development in People Living with and Affected by Cancer

Background: In order to support people throughout their cancer journey, the UK charity, Macmillan Cancer Support offers a range of free courses, training opportunities, workshops and e-learning for people living with and affected by cancer, including carers, family members, volunteers and community members. Macmillan asked the University of Lincoln to carry out a study around Learning and Development (L&D) provision focusing on (although not exclusive to) the Midlands region of England. Methods: The study collected quantitative and qualitative data from August to November 2019. This was done using an online survey (N=119) that asked people living with and affected by cancer questions on demographics and L&D provision. Participants could select multiple responses to the majority of questions. In addition, a series of semi- structured interviews (N=10) were conducted with a range of Professionals who were involved in supporting people living with and affected by cancer. Qualitative data were analysed using thematic analysis. Results: There was demand for L&D to be delivered face-to-face (N=74), as well as, online (N=66). Participants reported that they would like Health and Social Care Professionals (N=54) and people with a personal experience of a cancer diagnosis (N=64) to do facilitate the L&D. The most popular settings for L&D to be delivered were: in the community (N=75) and online (N=47) although some participants also reported wanting clinical or healthcare settings (N=38). There were four themes from the qualitative data with Professionals (1) Setting (2) Including the Lived Experience (3) Communication and Inclusiveness and (4) Tailoring to Individual Needs. Conclusion: Macmillan should ensure that their future L&D offer is available face-to-face, as well as, online. Although the mode of delivery is likely to be dependent on the L&D on offer. Where L&D is delivered face-to-face, there would appear to be demand for this to be held in both a clinical and community setting. Where appropriate this should be facilitated by experienced Health Professionals and people with lived experience.