A life-changing event: patients’ personal experiences of living with a long-term tracheostomy

ABSTRACTA tracheostomy is a commonly performed surgical procedure to alleviate some form of inadequate breathing. Tracheostomies may be temporary in the case of airway emergencies or may be for long-term access to airway and breathing depending on a patient's condition; in the case of the latter, this may have a major impact on a patient's life, one for which they are frequently unprepared. There is growing recognition that patients’ views of their health care experience are an important component of quality of care. Through a deeper understanding of the challenges inherent in being a tracheostomy user, we sought via a two-stage study to inform the design of products for use by individuals with permanent tracheostomies. Stage one involved 10 participants taking part in in-depth interviews to understand the lived experience of long-term tracheostomy patients. Using thematic analysis, we found participants accepted the need for a tracheostomy but were keen to return to a life pre-tracheostomy. The restricti...