The perspectives of people with dementia : research methods and motivations

Part I: Ethical and practical issues of involvement. 1. Introduction: Including people with dementia in research: Methods and motivation, Heather Wilkinson, University of Stirling 2. Getting down to brass tacks: a discussion of data collection with people with dementia, Charlotte L. Clarke, University of Northumbria at Newcastle and John Keady, University of Wales. 3. Ethical issues in dementia care research, Helen Bartlett and Wendy Martin, Oxford Dementia Centre, Oxford Brookes University. 4. Including the perspectives of older people in institutional care during the consent process, Gill Hubbard, University of Stirling, Murna Downs, Bradford University and Susan Tester, University of Stirling. 5. Including people with dementia: advisory networks and user panels, Lynne Corner, University of Newcastle. Part II: The views of people with dementia. 6. Should people with Alzheimer's Disease take part in research? Elaine Robinson. 7. Did research alter anything? James McKillop. Part III: Methods and motivations. 8. Working with staff to include people with dementia in research, Kate Allan, University of Stirling. 9. Successes and challenges in using focus groups with older people with dementia, Claire Bamford, University of Newcastle with Errollyn Bruce, Bradford Dementia Group. 10. 'Nobody's ever asked how I felt', Rebekah Pratt, University of Stirling. 11. Don't leave me hanging on the telephone: Interviews with people with dementia using the telephone, Anne Mason, University of Stirling and Heather Wilkinson, University of Stirling. 12. Using video observation to include the experiences of people with dementia in research, Ailsa Cook, University of Stirling. 13. South Asian people with dementia: Research issues, Alison M. Bowes, University of Stirling and Heather Wilkinson, University of Stirling. References. Index.