ELECTRONIC CONSENT TO HEALTH RESEARCH IN CANADA
2013
Consent has long been considered as the crystallization of the
researcher’s duty to inform research participants. Indeed, providing
consent is based on the right of participants to exercise full autonomy
in decisions affecting their personal privacy. That being said, as the
number of participants recruited in large-scale longitudinal studies –
for example – grows, obtaining and maintaining consents will become
increasingly onerous and complex. Hence, research studies are
gradually using interactive, electronic media for consent procedures –
which are seen as more accurate, dynamic and cost-effective. It is
unclear, however, how and under what conditions such an approach
will satisfy the legal and ethical requirements related to consent to
health research in Canada. This article explores how the notion of
written consent could be broadened to allow for an electronic consent
approach – an approach which holds promise of new efficiency for
health research, but that may raise a novel set of ethical, legal and
social considerations.
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