Talking About The Smokes: a large-scale, community-based participatory research project
2015
Objective : To describe the Talking About The Smokes (TATS) project
according to the World Health Organization guiding principles for
conducting community-based participatory research (PR) involving
indigenous peoples, to assist others planning large-scale PR projects. Design, setting and participants : The TATS project was initiated in
Australia in 2010 as part of the International Tobacco Control Policy
Evaluation Project, and surveyed a representative sample of 2522
Aboriginal and Torres Strait Islander adults to assess the impact of tobacco
control policies. The PR process of the TATS project, which aimed to build
partnerships to create equitable conditions for knowledge production,
was mapped and summarised onto a framework adapted from the WHO
principles. Main outcome measures : Processes describing consultation and approval,
partnerships and research agreements, communication, funding, ethics and
consent, data and benefits of the research. Results : The TATS project involved baseline and follow-up surveys
conducted in 34 Aboriginal community-controlled health services and
one Torres Strait community. Consistent with the WHO PR principles, the
TATS project built on community priorities and strengths through strategic
partnerships from project inception, and demonstrated the value of
research agreements and trusting relationships to foster shared decision
making, capacity building and a commitment to Indigenous data ownership. Conclusions: Community-based PR methodology, by definition, needs
adaptation to local settings and priorities. The TATS project demonstrates
that large-scale research can be participatory, with strong Indigenous
community engagement and benefits.
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