Development and acceptability testing of a patient decision aid for urinary diversion with radical cystectomy

AbstractPurpose:The choice of urinary diversion at the time of cystectomy is a life-altering decision. Patient decision aids (PtDA) are clinical tools that promote shared decision-making by providing information about management options and by helping patients communicate their values. We sought to develop and evaluate a PtDA for individuals undergoing cystectomy with urinary diversion.Materials and Methods:The International Patient Decision Aids Standards (IPDAS) were used to guide a systematic development process. A literature review was performed to determine options for urinary diversion and incidence of outcomes. Using the Ottawa Decision Support Framework, a prototype was created. A 10-question survey assessed PtDA acceptability amongst patients, allied health professionals, and urologists. The primary outcome was acceptability of the PtDA.Results:Ileal conduit and orthotopic neobladder were included as primary urinary diversion options because they had the most evidence and are most commonly perfor...