Qualitative research in teen experiences living with food‐induced anaphylaxis: A meta‐aggregation

Aim To describe the central experiences of teens living with Food-Induced Anaphylaxis as a first step in responding to health care needs in this population. Background As prevalence of allergy increases and commonly-outgrown allergies persist longer, chronic management for teens becomes increasingly important. This review seeks to understand how teens experience living with Food-Induced Anaphylaxis. Design Meta-aggregation for qualitative systematic review, to create synthesis for clinical improvement; guided by Joanna Briggs Institute methods and their Qualitative Assessment and Review Instrument. Data Sources Seven relevant databases were searched for original qualitative research July 2015; 10 studies (published 2007-2015) met inclusion criteria. Review Methods Both authors undertook critical appraisal, with consensus by discussion. Findings from line-by-line extraction were grouped into categories and syntheses. In studies with mixed populations, we included only teens (age 12-19) with Food-Induced Anaphylaxis. Results We developed three syntheses from nine categories and 64 subcategories to reflect central experiences of teens with Food-Induced Anaphylaxis, including: (1) Defining the allergic self,;(2) Finding a balance; and (3) Controlling the uncontrollable. The syntheses encompass importance of allergic identity/understanding, difficulties in coping with burdens of food allergy and reflect the complex risk interactions teens must negotiate in social contexts. Conclusion There is a need to respect teens as active participants in managing Food-Induced Anaphylaxis, while recognizing that social expectations and a lack of public awareness/safety can dangerously affect one's needs and decisions. This helps broaden how we conceptualize the needs of teens living with Food-Induced Anaphylaxis, informing ongoing care and management. This article is protected by copyright. All rights reserved.