Evaluation of support events for individuals with Gitelman/Bartter syndromes and their families: participant feedback and reflections

Gitelman and Bartter syndromes (GS/BS) are rare, recessively inherited, renal salt-wasting tubulopathies; here we have evaluated three national events for GS/BS patients and families, organised by the nursing team of the Cambridge Renal Genetics and Tubular Disorders service in 2011, 2015 and 2016