A systematic review of the attributes of electronic personal health Records for Patients with multiple sclerosis

The personal health record (PHR) is a novel information technology in the domain of health. In recent decades, PHR has been employed as an emerging tool for the improvement of healthcare services for patients with chronic diseases. The application of PHR plays a significant role in healthcare provision for multiple sclerosis (MS) as a chronic disease. The present study aimed to identify the attributes of PHR for patients with MS. This was a systematic review performed in 2019. Scopus, ProQuest, Embase, PubMed, IEEE, and Web of Science databases as well as the Google Scholar were searched using a combination of keywords. Data were collected using a data extraction form and analyzed using combined narrative and content analysis. Of the 1963 retrieved articles, 39 articles entered the study based on inclusion criteria. The attributes of PHR for patients with MS can be categorized into two groups of minimum data sets (MDS) and capabilities. MDS includes 13 categories and capabilities include eight. Identifying the PHR attributes, and use of them in designing and developing of PHR for MS, can be effective in better decision-making with regard to people’s health and improve the quality of care by accessing and using the data required for effective communication between people and the healthcare team.