Phenylketonuria patients’ and their parents’ acceptance of the disease: multi-centre study

Ewa Witalis,Bożena Mikołuć,Radoslaw Motkowski,Justyna Szyszko,Agnieszka Chrobot,Bozena Didycz,Agata Lange,Renata Mozrzymas,Andrzej Milanowski,Maria Nowacka,Mariola Piotrowska-Depta,Hanna Romanowska,Ewa Starostecka,Jolanta Wierzba,Magdalena Skórniewska,Barbara Iwona Wojcicka-Bartlomiejczyk,Maria Gizewska

Phenylketonuria patients’ and their parents’ acceptance of the disease: multi-centre study

2016

Ewa Witalis
Bożena Mikołuć
Radoslaw Motkowski
Justyna Szyszko
Agnieszka Chrobot
Bozena Didycz
Agata Lange
Renata Mozrzymas
Andrzej Milanowski
Maria Nowacka
Mariola Piotrowska-Depta
Hanna Romanowska
Ewa Starostecka
Jolanta Wierzba
Magdalena Skórniewska
Barbara Iwona Wojcicka-Bartlomiejczyk
Maria Gizewska

Purpose Phenylketonuria (PKU) still poses a therapeutic challenge for patients and medical professionals. The aim of the study was to assess both patients’ and their parents’ acceptance of the disease.

Keywords:

Physical therapy
Psychiatry
Disease
Medicine
multi centre
Public health
Quality of Life Research

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