IIAM (important information about me): a patient portability profile app for adults, children and families with neurodevelopmental disabilities

AbstractPurpose: To describe the development of important information about me (IIAM), an application (app) used to communicate and organize healthcare information for people with neurodevelopmental disabilities (NDD).Methods: Prior to the development of IIAM version 1.0, households with NDD were selected to participate in a focus group. Respondents (n = 7) were parents of children with NDD. Participants were asked to use a beta version for at least 2 months in day-to-day applications and to complete a questionnaire at the end of the trial.Results: Over half (57%) of the participants found the beta version to be useful. The greatest limitation in usability was the child’s age and literacy level. All participants found the app to be visually appealing and easy to navigate. IIAM was commonly used to communicate information to caregivers, and to facilitate quality interactions between the child and others.Conclusion: Mobile technology has become ubiquitous and has emerged as an important tool in healthcare. ...