Genetic Prevention, Carrier Screening and the Role of Citizens: The Legitimisation of Libertarian Paternalist Policies by Deliberative Democracy

In this paper, first we recall some paradigmatic ways of implementing carrier screening policies in a community. Then we move on to a proposal concerning a possible bottom-up solution based on deliberative democracy (and thus on real citizens’ participation in decisional processes) that should legitimate libertarian paternalist strategies concerning which genetic screenings should be made and which policies should be adopted by the institutions.