Epidemiology of juvenile dermatomyositis in Alsace

2019 
: Juvenile dermatomyositis (JDM) is a rare inflammatory myopathy. 1 Little reliable data is available on epidemiology of JDM.This is an observational, retrospective, multicenter study, using the capture-recapture method to assess incidence and prevalence of JDM in Alsace, a French region with a low migratory rate. Only patients, aged 0 to 16 years, having JDM according to the Bohan and Peter criteria 2 and the EULAR/ACR criteria 3 , were included. Overlap syndromes were excluded. Seven sources were used: hospital dermatologists and pediatricians, their counterparts in private practice, hospital rheumatologists and internists, and the French Information System Medicalization Program (ISMP).
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