Experiencia en el proceso de transición de pacientes con enfermedad neuromuscular

2017 
: Neuromuscular diseases are mostly genetic disorders, with chronic and progressive course. Affected people are at high risk of developing physical and emotional disabilities. In the last decades, the advance in technology and science has increased chronic pediatric patients survival rate, thus requiring an ongoing assistance in adult hospitals, making the transition a necessity and a challenge. This article reports the clinical practice designed between Hospital Garrahan and Hospital Ramos Mejia for the transition of 27 adolescents during 2015, setting achievements, findings and challenges resulting from this experience.
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