Why we need a process on breaking news of Juvenile Idiopathic Arthritis: a mixed methods study
2016
Background
Juvenile Idiopathic Arthritis is the most common chronic pediatric rheumatic disease. The announcement of Juvenile Idiopathic Arthritis poses for parents a number of challenges that make it hard to accept a diagnosis of the disease for their child; yet to our knowledge, no study to date has focused on the time period immediately surrounding the diagnosis. This study sets out to describe parents’ experiences in engaging with their child’s diagnosis of Juvenile Idiopathic Arthritis.
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