Hereditary neuromuscular disease and multicomposite subjective health status: feasibility, internal consistency and test-retest reliability in the French version of the Nottingham Health Profile, the ISPN:

Objective: To evaluate the feasibility, internal consistency and reproducibility of the French version of the Nottingham Health Profile (NHP) completed by adults with hereditary neuromuscular disease.Design: Cross-sectional study with evaluation at 15±7 days for NHP test retest.Setting: Multidisciplinary rehabilitation consultations in Reims.Subjects: Sixty-four neuromuscular disease outpatients completed the NHP consecutively between April 2002 and December 2003.Main measures: French version of the Nottingham Health Profile (NHP), Barthel Index and sociodemographic characteristics.Results: The average completion percentages for the different dimensions was 84.2% (range 72-97%). With respect to the completion feasibility of the physical mobility subscale, 7-20% of neuromuscular disease patients failed to complete four items out of eight. In the pain subscale, the same difficulty was encountered for three items out of eight. Internal consistency as assessed by Cronbach's alpha was acceptable for the subsca...