922-P: Experiences and Difficulties in Transitioning from Pediatric to Adult Diabetes Clinical Care

2021 
Young adults with type 1 diabetes (T1D) undergoing transfer from pediatric to adult care are at an increased risk of acute and chronic health complications due to challenges associated with transitioning healthcare. This study aims to highlight patient-focused areas of improvement that could be used to optimize transition of care. Thirteen patients with T1D between ages 17-25 who had completed a pediatric transfer visit and had an adult diabetes appointment scheduled or completed were randomly selected to complete a telephone questionnaire that included open-ended questions regarding experiences transitioning to adult diabetes care. Interviews were analyzed for themes. Thirteen young adults with T1D (Mage 22.8 ± 1.5 years; Mduration 13.0 ± 5.4 years; 46% female; 69% private insurance; 69% Caucasian, 23% Hispanic, 8% “Other”) completed the interview. Two primary themes emerged regarding “the easiest part of transfer”: streamlined process (77%) and clinic familiarity (23%). Three themes related to transition challenges were: provider compatibility (31%), lack of guidance (23%), and difficulty changing providers (23%). In those who suggested areas of improvement, two main themes emerged: distance to clinic (23%) and scheduling (15%). Patients described three support systems themes (family, significant other, friend) and three themes of support type (financial, emotional, and diabetes-care related). The majority of patients highlighted that a streamlined process and previous familiarity with the clinic made transferring care easier, while provider compatibility and lack of guidance in the transfer process were barriers. This may indicate areas where pediatric providers can help improve the transfer to adult care. Young adults also highlighted the continued need for financial, emotional, and diabetes-care support as they transition care. These findings are valuable considerations for creating a patient-centered and effective transition program. Disclosure E. G. Lorton: None. E. M. Youngkin: None. S. Majidi: Advisory Panel; Self; Companion Medical.
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