The Right Not to Know in the Context of Genetic Testing

The use of new analytical techniques in genetic testing makes it difficult to provide the test person with useful information on all relevant outcomes of the examination at issue. In cases of incurable diseases, the affected person frequently does not want to be informed about test results. Against this background, it is essential to inform him—before commencing the testing—about his right not to know. This right is now broadly recognised. However, it is not absolute, although exceptions to the rule are limited to a very few situations.