Understanding the healthcare communication needs of pediatric patients through the My CHATT tool: A pilot study

ABSTRACTBackground: Communication is considered a key indicator for high-quality patient- and family-centered healthcare. However, few studies have assessed pediatric preferences for healthcare communication. This pilot study aimed to increase the understanding of pediatric communication preferences, and develop a patient- and family-informed clinical tool (i.e. My CHATT) that can be quickly disseminated and easily implemented.Methods: Qualitative thematic methods via focus group and survey research were employed. Common themes discussed during separate patient (N = 4; ages 16–22) and parent (N = 5) focus groups guided the development of My CHATT. Healthcare providers (n = 9) also completed a 10-minute interview and questionnaire to aid in the development of this tool.Results: Thematic analysis revealed that patients strongly desired to be involved in communication, but stated that providers and parents rarely engaged in direct communication with them. Parents expressed discomfort regarding direct provide...