The lived experience of risk for a person with a recent diagnosis of dementia (Alzheimer's type): a longitudinal phenomenological study

This longitudinal qualitative study explored the lived experience of risk for people with a recent diagnosis of dementia (Alzheimer’s type). Risk is a concept used in dementia research when examining choice and decision-making, and is primarily a negative phenomenon associated with danger and hazard. In this study, risk is used as an exemplar of autonomy and rights—rights to independent action taken with free will and choice. These rights are entwined with key principles we live by: personal autonomy—the right to act independently—to take a risk.