Long-term outcome in childhood hydrocephalus: a comparison of child and parental perceptions of health outcome

Background Assessment of outcome and quality of life in children with hydrocephalus should attempt to obtain the perspective of the children themselves, when possible. Although we have developed the Hydrocephalus Outcome Questionnaire (HOQ) for parents, the aim of this study was to assess the scientific properties of a child-completed version of the HOQ (cHOQ) and compare child and parent responses in a select group of older, higher-functioning children with hydrocephalus.