ISQUA16-2690IMPROVING CARE AND CHOICE AS MOTOR NEURONE DISEASE PROGRESSES

The research built on a qualitative project conducted in 2012 around choices faced by people with Motor Neurone Disease (MND) at the end of their lives. The aim was to develop survey questions that could be asked of all people with MND about these choices to better understand the decisions and how ready people felt to be making them. Questions were developed to capture feedback from people living with MND to understand their care and support needs as the disease progresses. This was achieved via the following methods: