A comparison of patients' and physicians' assessments of disease activity using the Swedish version of the Systemic Lupus Activity Questionnaire

Objectives: We compared patients’ assessments of systemic lupus erythematosus (SLE) disease activity by a Swedish version of the Systemic Lupus Activity Questionnaire (SLAQ) with physicians’ assessments by the Systemic Lupus Activity Measure (SLAM) and Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2K). We also explored the performance of the SLAQ in patients with short (< 1 year) versus long (≥ 1 year) disease duration.Method: Patients filled out the SLAQ before physicians’ assessments. Correlations between SLAQ total, subscales (Symptom score, Flares, Patients global) and SLAM and SLEDAI-2K, as well as between the corresponding items in SLAQ and SLAM, were evaluated using Spearman’s ρ. Comparisons between patients with different disease durations were performed with Mann–Whitney U or chi-squared tests.Results: We included 203 patients (79% women), with a median age of 45 years [interquartile range (IQR) 33–57 years] and disease duration of 5 years (IQR 0–14 years). Correlations between...