Measuring Health-Related Quality of Life in Children and Adolescents : Implications for Research and Practice

Contents: Preface. Part I: Historical Evolution and Conceptual Foundations of Pediatric Health-Related Quality of Life Assessment. R. Levi, D. Drotar, Critical Issues and Needs in Health-Related Quality of Life Assessment of Children and Adolescents With Chronic Health Conditions. E.L. Schor, Children's Health and the Assessment of Health-Related Quality of Life. J.W. Finkelstein, Methods, Models, and Measures of Health-Related Quality of Life for Children and Adolescents. J.D. Lantos, Some Moral and Political Pitfalls in Measuring Quality of Life. Part II: Population-Based Applications of Measures of Health-Related Quality of Life With Children and Adolescents. R.M. Kaplan, Implications of Quality of Life Assessment in Public Policy for Adolescent Health. B. Starfield, A. Riley, Profiling Health and Illness in Children and Adolescents. J.M. Landgraf, L. Abetz, Influences of Sociodemographic Characteristics on Parental Reports of Children's Physical and Psychosocial Well-Being: Early Experiences With the Child Health Questionnaire. Part III: Methods, Measures, and Applications of Health-Related Quality of Life Assessment in Children and Adolescents With Specific Chronic and Health Conditions. A.M. Jacobson, K. Fried, Conceptual Issues in Developing Quality of Life Assessments for Children: Illustrations From Studies of Insulin-Dependent Diabetes Mellitus. S. Saigal, P. Rosenbaum, L. Hoult, W. Furlong, D. Feeny, E. Burrows, B. Stoskopf, Conceptual and Methodological Issues in Assessing Health-Related Quality of Life in Children and Adolescents: Illustration From Studies of Extremely Low Birthweight Survivors. D. Feeny, E.F. Juniper, P.J. Ferrie, L.E. Griffith, G.H. Guyatt, Why Not Just Ask the Kids? Health-Related Quality of Life in Children With Asthma. S.R. Boggs, P. Durning, The Pediatric Oncology Quality of Life Scale: Development and Validation of a Disease-Specific Quality of Life Measure. D.I. Czyzewski, L.K. Bartholomew, Quality of Life Outcomes in Children and Adolescents With Cystic Fibrosis. S.L. Gortmaker, W.R. Lenderking, C. Clark, S. Lee, M.G. Fowler, J.M. Oleske, the ACTG 219 Team, Development and Use of a Pediatric Quality of Life Questionnaire in AIDS Clinical Trials: Reliability and Validity of the General Health Assessment for Children. L.S. Walker, C.A. Heflinger, Quality of Life Predictors of Outcome in Pediatric Abdominal Pain Patients: Findings at Initial Assessment and 5-Year Follow-Up. Part IV: Methods, Measures, and Applications of HRQOL Assessment in Children With Growth and Endocrine Problems. I. Wiklund, A. Erling, K. Albertsson-Wikland, Critical Review of Measurement Issues in Quality of Life Assessment for Children With Growth Problems. B. Stabler, N.C. Frank, Quality of Life and the Psychiatric Status of Individuals Treated With GH in Childhood. D.E. Sandberg, P. Michael, Psychosocial Stresses Related to Short Stature: Does Their Presence Imply Psychological Dysfunction? D.H. Skuse, S. Cave, A. O'Herlihy, R. South, Quality of Life in Children With Turner Syndrome: Parent, Teacher, and Individual Perspectives. Part V: Summary of Recommendations for Clinical Research Applications of Assessments of Pediatric Health-Related Quality of Life. D. Drotar, R. Levi, T.M. Palermo, K.A. Riekert, J.R. Robinson, N. Walders, Clinical Applications of Health-Related Quality of Life Assessment for Children and Adolescents. D. Drotar, R. Levi, T.M. Palermo, K.A. Riekert, J.R. Robinson, N. Walders, Recommendations for Research Concerning the Measurement of Pediatric Health-Related Quality of Life.