Psychosocial Lived Experience of Parents with Children Diagnosed with Cancer in Lubumbashi
2020
Objective: To determine the psychosocial problems, social acceptance and the impact
of the costs of parents whose child has cancer. Method: We carried out a
descriptive cross-sectional study over two-year periods (from January 3, 2018
to March 31, 2020) in the pediatric oncology unit of clinics at the University
of Lubumbashi, in DR Congo. Results: 129 parents of children with cancer
in the pediatric oncology unit were included in our study. Most children with
cancer (53%) were accompanied by their mothers who had a low level of education
(53.0%). Emotional shock was the most observed reaction (68%) to the
announcement of the disease (cancer). Retinoblastoma has had a significant
economic impact on families without medical coverage. Only 38% received
psychological support from parents. Sadness was the most common feeling (77%)
of households. Support workers consider their relationship with the medical
profession acceptable in 67% and difficult in 11%. The majority of parents
(78%) felt that the time to provide medical care was longer than expected. Conclusion: Parents of children with cancer had different feelings and reactions. This
observation may be useful for the development of a health policy, in particular
that of pediatric cancer in DR Congo.
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