Análisis de discapacidad utilizando WHODAS 2.0 versión de 12 preguntas a pacientes de Instituto Teletón Santiago dos años después de su alta institucional

Introduction: Chile Teleton Institute is a not-for-profit organization dedicated to providing comprehensive rehabilitation to children with physical disabilities until they reach 20 years of age. Method: The 12-item version of the World Health Organization Disability Assessment Schedule (12-Whodas) survey was applied by phone interview to patients or representatives from Santiago Teleton Institute, 2 years after discharge. Results: The 12-Whodas global median score was 17 points. The performance difficulty is moderate or severe in all domains in more than 40% of the patients, and varies between 55.4% in mobility and 42.6% in personal care. Being self-employed and having a college education were associated with a lower level of disability (OR: 0.06 and 0.26, respectively), whereas being older and unemployed for health reasons were associated with a higher likelihood of severe disability (OR: 1.15 and 2.80, respectively). Conclusions: There was a clinically significant level of disability in all the domains described in 12-Whodas. We confirm international data reporting that being self-employed and college-educated are associated with a lower level of disability. A lack of inclusive education for this population stands out. Adaptation and validation of the 12-Whodas in individuals with neuromusculoskeletal disorders is needed to provide specific normative data allowing international comparisons.