Update on the status of effective programs to help dementia family caregivers in the United States: Observations from the search for programs to include in Best Practice Caregiving

Abstract Although many programs to help family caregivers of people with dementia have research-based evidence of effectiveness, they are not available in most US communities and caregivers have difficulty finding the kinds of assistance they need. One reason for this problem is that healthcare and community organizations as well as funders that might provide or pay for one or more programs are not aware of them. Until now, there was no readily accessible source of information providers or funders could use to select programs that fit their organizations’ mission and resources. Best Practice Caregiving, a free, searchable database of comprehensive information about effective and feasible programs was released in early 2020. In this chapter, we describe our search for programs to include in Best Practice Caregiving, discuss our resulting observations about the current status of such programs in the United States, and identify several difficult issues that continue to interfere with increased awareness, availability, and use of the caregiver support programs.